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FORUM DYSKUSYJNE - COLITIS ULCEROSA

Zapraszam wszystkich do udziału w forum dyskusyjnym na temat choroby Colitis Ulcerosa i wszystkiego co się z nią wiąże. Zapraszam wszystkich tych, którzy chcieliby podzielić się swoimi doświadczeniami i przeżyciami w walce z tą chorobą.

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1. RE: Siemie Lniane Odpowiedz
2008-11-10 02:37:46 | URL: #
    Ja jak się spytałem mojego lekarza o siemię to mnie wyśmiał, powiedział że mogę sobie darować bo i tak nic nie pomoże w moim stanie. choruję od ponad roku na Cu, brałem asamaks, encorton, metypred a nawet imuran i nic nie pomogło. Obecnie jestem leczony biologicznie i też efektów nie ma. jak tak dalej pójdzie to przed upływem 2lat od kiedy zacząłem chorować pożegnam się z jelitem

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2. RE: Siemie Lniane Odpowiedz
2008-11-10 13:22:59 | URL: #
    Witaj! Nie powinieneś tracić nadziei tylko zastanowić się czy nie szukać innego gastrologa. Oczywiście że siemię nie leczy colitisu i z tym sie zgadzam z Twoim lekarzem. Po moich doświadczeniach kilkudziesięcioletnich mogę stwierdzić, że osiągniecie remisji w colitisie zależy od przyjętej dawki leku. W moim przypadku to salazopiryna. Wiem że lekarze trzymają się sztywno książkowych zasad co do maksymalnej dawki. Gdybym ja trafił na takich i wykonywał ich polecenia to po kilku latach rozstałbym się z jelitem. Tak przeżyłem prawie czterdzieści lat z bardzo wysoka dawką podtrzymująca 8-12 tabletek, a w zaostrzeniach jeszcze wyższą. W młodości miałem kłopoty żeby utrzymać dłuższą remisję dopóki nie zrozumiałem, że muszę dopasowywać dawkę do aktualnej sytuacji. Przez te lata nie miałem problemów z morfologią ani z próbami wątrobowymi. Dlatego nie musiałem ograniczać dawkowania. Im dłużej trwa zaostrzenie tym większe robi spustoszenie w jelicie no i w organizmie. Nie chce się powtarzać, bo napisałem w tym temacie wiele postów także na tym forum. Ostatnie moje problemy z jelitem myślę, że wynikają z choroby popromiennej. Dlatego wpadłem w panikę bo stosowana dotąd metoda przestała działać. Zacząłem podejrzewać , że to może rak i w myślach szykowałem się do jak najszybszej operacji, żeby się pozbyć tego świństwa(zresztą czekam na wyniki z wycinków). I okazało się, że znowu się udało bo nastąpiła poprawa i zacząłem zmniejszać ilość spożywanej sulfy. Stąd moja rada. Musisz znaleźć lekarza, który podejmie ryzyko (oczywiście pod kontrolą) zwiększenia dawkowania, a zobaczysz, że przyniesie efekt. Pozdrawiam. Anko.

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