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FORUM DYSKUSYJNE - COLITIS ULCEROSA

Zapraszam wszystkich do udziału w forum dyskusyjnym na temat choroby Colitis Ulcerosa i wszystkiego co się z nią wiąże. Zapraszam wszystkich tych, którzy chcieliby podzielić się swoimi doświadczeniami i przeżyciami w walce z tą chorobą.

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Ostatnia wiadomość w wątku: 2017-07-31 13:46:30 napisana przez ~Metrochedry
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~siaba-4811
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1. sterydy Odpowiedz
2011-05-22 20:38:29 | URL: #
    ile czasu mozna brac sterydy i jakie sa skutki uboczne, bralam 4 miesiace 2 miesiace spokoju inawrót choroby i biore już prawie miesiąc i poprawy brak nadal krwawienie wystepuje


~makro1955
Gość

2. RE: sterydy Odpowiedz
2011-05-24 14:25:25 | URL: #
    A jaką bierzesz dawkę! Najwyższą, poza Asamaxem 3 x 2 tabl, brałam 32 mg Metrypredu w dwóch dawkach - rano 16 mg i drugą o 13-tej.Nie wolno brać po 14tej,bo nie zaśniesz.
I bezwzględnie dieta ubogoresztkowa !!!!!! Żadnej kawy, mleka /mała ilość koziego/ napojów gazowanych!

~makro1955
Gość

3. RE: sterydy Odpowiedz
2011-05-24 14:41:47 | URL: #
    Zapomniałam dodać, że sterydy biorę co dziennie od 6 lat.Wcześniej, przez 7 lat brałam samą Sulfasalazynę 500 ale uczuliłam się na nią i wtedy zastąpiono ten lek 4 mg Metypredu w remisji. Natomiast w nawrocie choroby brałam 32 mg przez 6 m-cy, teraz 12 mg rano, plus Asamax 500 oczywiście - ten w zależności od kondycji jelita - 3X 1, 4 x 1 a teraz 3 x 2 tabl. po jedzeniu. PO tylu latach tak sterydy, jak Asamax ustawiam sobie sama, bo nie będę co tydzień wystawać w kolejce do rodzinnego.Zresztą mam dobry układ z moją lekarką i wiele spraw załatwiam na telefon - jasne jest, że z CU nie zawsze można wyjść z domu. Pozdrawiam i głowa do góry!

~km2
Gość

4. RE: sterydy Odpowiedz
2011-05-24 22:55:41 | URL: #
    Ja zachorowałem trzy lata temu i praktycznie u mnie też bez sterydów nie jest dobrze. Moje pytanie czy wiadomo jak długo można brać sterydy? Bo myślę, że dawka 8-16mg Metypredu dziennie przez dłuższy czas jakoś chyba jednak szkodzi (aczkolwiek ja po 3 latach nie mam żadnych skutków ubocznych). I drugie pytanie czy istnieje takie coś jak sterydozależność? Bo ja obserwuję u siebie, że małe dawki (np 4mg Metypredu) nie działają już na mnie ( a kiedyś dawały efekty).

~-hana-
Gość

5. RE: sterydy Odpowiedz
2011-05-25 21:37:15 | URL: #
    Ja brałam metypred 14lat,i daje słowo ze czułam sie nawet na tym metypredzie nieżle przy każdej próbie odstwienia sterydow było zostrzenie myślę że byłam juz uzalezniona po tylu latch brania.Do tego doszła osteoporoza posterydowa jestem akurat w trakcie terpaii leczenia osteoporozy lekiem Aclasta raz w roku wlew kroplowy i jest lepiej z kośćmi odbudowuję się wszystko tylko że już nie biorę sterydów bo nie mam już jelitka

~siaba-4811
Gość

6. RE: sterydy Odpowiedz
2011-05-26 19:11:06 | URL: #
    ja biore 2 tabletki po 16 mg i salofalk 500 3x2 sterydy biore od swiat wielkanocnych ale juz mi jest lepiej, jak skonczy sie krwawienie to sptobuje jeszcze Actimel i banan . O Actimelu to wczesniej tez slyszalam ze trzeba pic a jeszcze pije ziola pokrzywe i mieszanke ziolowa z ksiazki Ozarowski Jaroszewski Rosliny lecznicze i ich praktyczne zastosowanie. Ziola pije dopiero 2 tygodnie.

~jujujujelita
Gość

7. RE: sterydy Odpowiedz
2011-05-28 18:28:18 | URL: #
    ja robilam sobie wlewki z corhydronu - najnizsza dawka. po I objawy ustaly i juz nie mialam krwi. kjontynuowalam caly czas stosowanie przez 10 dni i czulam sie dobrze-1 stolec na dzien lub nawet 1 na 2 dni. jednak po odstawieniu, 6stego dnia objawy powrocily wiec znow dawaj zacfzelam sobie robic te wlewki i dopiero po ok. 3-4 ustalo krawawienie wiec postanowilam ze tym razem strzele sobie ze 20 wlewek, a co. dzis mija tydzien bez corhudronu i czuje sie wciaz dobrze, wiec mam nadzieje ze tak pozostanie. diete scisla wprowadzilam dopiereo od wczoraj. te wlewki z corhydronu sa naprawde ok, bo nie dzialaja ogolnie, tylko miejscowo i nie ma efektow ubocznych - tak mi powiedziala doktor.jedyny minus to cena-za 5 ok.30-50 zl trza dac. nie sa na znizke i nie ma alternatywy. no i troche dyskomfortowe ze musisz je sobie wlewac gruszka na dobranoc. romantyzm na tym traci powodzenia !!!

~olkamag
Gość

8. RE: sterydy Odpowiedz
2011-05-30 00:35:03 | URL: #
    Ja mialam wlewki z corhydronu i do tego 40mg metypredu po kilku miesiacach mialam tego serdecznie dosc, myslalam ze bede juz tak wygladac zawsze! (opuchlizna i nagly przyrost wagi) Ale cale szczescie nie biore juz sterydow od polowy lutego wiec wrocilam do normalnej wagi i wygladu Ale musze przyznac ze gdyby nie te sterydy to napewno nie bylabym teraz w remisji... Lekarka mi mowila ze ta dawka byla "uderzeniowa" zeby zaleczyc chorobe a nie ja tylko ciagle podleczac, wiec mimo wszystko warto bylo wytrzymac te kilka miesiecy

~ASIA89
Gość

9. RE: sterydy Odpowiedz
2011-06-01 08:08:57 | URL: #
    Niestety myślę, że nie odbija się to na organiznie zbyt dobrze. Metypred jest stosunkowo łągodnym sterydem, jednak ja brałam Metypred, który nie pomagał, więc przepisano mi dodatkowo Encorton w dużej dawce. Nie świadoma konsekwencji (z reszta tak jak lekarz), brałam to świństwo razem przez prawie 2 lata. Niestety moj organizm nie reaguje po tym na sterydy, zamiast poprawy jest jeszcze gorzej. Mam steroido odporność dzięki lekarzowi, ale na szczęście udało mi s ię załapać na leczenie biologiczne, które bardzomi pomaga i czuje sięrewelacyjnie!

~Metrochedry
Gość

10. RE: sterydy Odpowiedz
2017-07-31 13:46:30 | URL: #
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