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FORUM DYSKUSYJNE - COLITIS ULCEROSA

Zapraszam wszystkich do udziału w forum dyskusyjnym na temat choroby Colitis Ulcerosa i wszystkiego co się z nią wiąże. Zapraszam wszystkich tych, którzy chcieliby podzielić się swoimi doświadczeniami i przeżyciami w walce z tą chorobą.

Pozdrawiam ALFRED


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Ostatnia wiadomość w wątku: 2017-08-26 05:30:26 napisana przez ^ppst
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Wyświetlam 7 wiadomości na 1 stronie
^bhord
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Ostatni post: 2015-12-29 20:35:10


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1. Czwarty rok remisji, nadzieja dla Was.. Odpowiedz
2015-12-29 20:35:10 | URL: #
    Hej,

chciałbym opowiedzieć historię mojej choroby i być może dać Wam iskierkę nadziei. Już czwarty rok w solidnej remisji i prowadzę normalny tryb życia chcę dać Wam wskazówkę co możecie spróbować, ale nie mam pojęcia o medycynie, więc robicie to na własną odpowiedzialność.

Od początku:
Zapadłem na CU jakieś 6 lat temu, na szczęście tylko końcowy odcinek jelita i to umiarkowanie ostre. Miałem od jakiegoś czasu delikatny układ pokarmowy i zdarzało mu się "panikować", ale dopiero ostra biegunka (pewnie zjadłem coś nieświeżego) spowodowała ujawnienie się choroby.

Od lekarza do lekarza, kolonoskopia, szpital, dieta, leki (m.in Salofalk), ale bez wyraźnej poprawy. Deprecha, myśli kręcące się w kalkulacji odległości do najbliższej toalety i migotanie zwieraczy to był mój chleb powszedni . Doszedłem do wniosku, że istotnym źródłem był stres: robota po robocie, mało wypoczynku: odkładałem na wkład własny na mieszkanie. W dodatku sama choroba
i jej nieprzyjemne powikłania dokładały od siebie, byłem kompletnie rozbity.

Wtedy zauważyłem pewną prawidłowość, kiedy poprawiałem sobie humor ulubionym żarełkiem (spożytym zwykle wbrew zaleceniom diety CU), np. kebabik z frytami objawy, wbrew przewidywanim stawały się jakby mniej uciążliwe. Podobnie z imprezowaniem na mieście. Mimo że się blokowałem stoperanami i innymi podobnymi wynalazkami to relaksując się przy piwku ze znajomymi nie miałem ani razu potrzeby awaryjnego korzystania z WC.

Postanowiłem iść za ciosem, zmieniłem pracę, ustablilizowałem swój tryb życia, zaczęła się poprawa. Ze stolca zniknęła krew i śluz. Odstawiłem leki, sam fakt, że z głowy wyrzuciłem konieczność pamiętania o braniu leków oddalił moje czarne myśli i zaczęło być normalnie. Sporo poluzowałem dietę, unikałem tylko mleka i owoców z drobnymi pestkami (jagody, maliny itp.) by zacząć się całkowicie normalnie się odżywiać.

Zacząłem uprawiać sport (na siłce zawsze jest toaleta) i było jeszcze lepiej, endorfiny zrobiły swoje. Obecnie zmieniłem dietę zdecydowanie zdrowszą, znacznie bogatszą w warzywa i ograniczyłem produkty mocno przetworzone. Zacząłem mieć zupełnie inny problem: zaparcia. W czasach gdy parę razy dziennie musiałem usiąść na tronie, a musiało to nastąpić w czasie nie dłużyszm niż 5 minut. Teraz średnio mam potrzebę posiedzenia raz na dwa dni, to jest ogromny postęp. Teraz mój układ trawienny jest bardziej przewidywalny niż u wielu moich z pozoru zdrowych znajomych.


Postanowiłem napisać ten post po tym jak niedawno wyrzuciłem do śmieci kilka paczek przeterminowanego Salofalku. Głowa do góry i bądźcie szczęśliwi!

(2015-12-29 20:50:44) Wiadomość została zmodyfikowana

^Pascale
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Ostatni post: 2015-12-29 22:48:59


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2. RE: Czwarty rok remisji, nadzieja dla Was.. Odpowiedz
2015-12-29 22:46:47 | URL: #
    Witaj, bardzo przyjemnie czytało mi się Twój post ja mam podobnie, tzn. choruję dłużej, ale odstawiłam leki, po których czułam się naprawdę źle (asamax), niestety im więcej stresu tym chyba w tej chorobie gorzej ale da się wytrzymać Dużo zdrowia życzę! Pozdrawiam!

^obyty.z.cu
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Ostatni post: 2015-12-30 21:58:33


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3. RE: Czwarty rok remisji, nadzieja dla Was.. Odpowiedz
2015-12-30 21:58:33 | URL: #
    Postanowiłem iść za ciosem, zmieniłem pracę, ustablilizowałem swój tryb życia, zaczęła się poprawa

CU należy do chorób psychosomatycznych.
To znaczy że wiele zależy od naszej psychiki,stresu,zdrowego życia itd...
Zachowanie takiej zdrowej relacji bardzo ułatwia życie z naszą chorobą.
Wielu chorujących ma długoletnie remisje i oby tak mieli jak najdłużej.
Inna sprawa to leki...
Dużo się mówi o chemoprewencji.My jesteśmy w tej grupie bardzo narażonych statystycznie na raka jelita.Im dłużej chorujemy,tym większy ten procent.
W badaniach stwierdzono,że systematycznie branie mesalazyny (asamax czy salofalk) w dawce ok.2,5 mg jest bardzo skuteczne chemoprewencyjnie.
No tak, ale jak nie ma objawów to szybko zapomina się o lekach i kto się będzie martwił co będzie później.Czasem może być za późno.
Mi po 18 latach od rzucenia palenia papierosów wyszła POChP.A byłem taki zadowolnony że wyszedłem ze stanu zagrożonych.Nic w przyrodzie nie ginie...niestety.
Ale wszystkim życzę długoletniej remisji.

A z jedzeniem to jest różnie,lepiej wiedzieć o tym jak najwięcej,o błonniku rozpuszczalnym i nie rozpuszczalnym.On bardzo może pomóc w tych zaparciach czy biegunkach.

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4. RE: Kolon C Odpowiedz
2016-01-19 03:42:04 | URL: #
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5. RE: Czwarty rok remisji, nadzieja dla Was.. Odpowiedz
2017-04-18 11:00:27 | URL: #
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6. RE: Czwarty rok remisji, nadzieja dla Was.. Odpowiedz
2017-07-31 12:56:24 | URL: #
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